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PALLIATIVE CARE AND QUALITY OF LIFE IN PATIENTS WITH CANCER DURING THE TERMINAL PHASE. A FAMILY/PATIENT PERSPECTIVE

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dc.creatorALICIA ELIZABETH HERMOSILLA ÁVILA
dc.date2021
dc.date.accessioned2025-01-10T15:22:45Z
dc.date.available2025-01-10T15:22:45Z
dc.date.issued2021
dc.description.abstractOBJECTIVE TO EXPLORE THE MEANING OF PALLIATIVE CARE AS PERCEIVED BY THE FAMILY CAREGIVER AND THE PATIENT WITH ADVANCED CANCER. METHOD INFORMATION WAS COLLECTED THROUGH IN-DEPTH INTERVIEWS AND FIELD DIARIES TO CONDUCT THIS QUALITATIVE RESEARCH STUDY, WITH AN INTERPRETATIVE PHENOMENOLOGICAL APPROACH. WE ADOPTED HEIDEGGER?S PERSPECTIVE FOR THE DEVELOPMENT OF HERMENEUTIC INTERPRETATION, AND THEREFORE FOLLOWED THE STAGES OF INTENTIONALITY, REDUCTION, AND CONSTITUTION. WE USED BARDIN?S CONSTRUCTS OF PRE-ANALYSIS, CODING, CATEGORISATION, AND INTERPRETATION FOR THE DISCOURSE ANALYSIS. RESULTS SEVENTEEN PATIENT-FAMILY CAREGIVER DYADS WERE CONSIDERED. THE PERCEPTIONS OF PALLIATIVE NURSING CARE FOCUSED ON TRANSPERSONAL RELATIONSHIPS AND THE DISCOURSES REFERRED TO A LACK OF CLOSENESS BETWEEN NURSING STAFF AND THE PATIENT. THIS WAS MAINLY EXPRESSED AS A LACK OF EMOTIONAL UNDERSTANDING AND UNMET NEEDS. THEMES WERE DRAWN FROM THESE FINDINGS BASED ON DEVELOPING A TRANSPERSONAL RELATIONSHIP AS A PRIORITY, INCLUDING MEETING NEEDS AND PROVIDING THE EMPATHIC ACCOMPANIMENT THAT IS FUNDAMENTAL FOR EMOTIONAL WELL-BEING. CONCLUSION FROM THE PERSPECTIVE OF THE DYADS, PALLIATIVE CARE COVERS INTANGIBLE ASPECTS OF CARE. THIS REQUIRES NURSING STAFF TO WORK COLLABORATIVELY WITH COLLEAGUES, WITH OTHER HEALTH PROFESSIONALS AND INTERPROFESSIONALLY, INCLUDING THE INSTITUTIONS INVOLVED IN CARE. FURTHER WORK IS REQUIRED TO IMPLEMENT THESE ACTIONS.
dc.formatapplication/pdf
dc.identifier.doi10.1016/j.enfcli.2021.04.002
dc.identifier.issn1130-8621
dc.identifier.urihttps://repositorio.ubiobio.cl/handle/123456789/11733
dc.languagespa
dc.publisherENFERMERIA CLINICA
dc.relation.uri10.1016/j.enfcli.2021.04.002
dc.rightsPUBLICADA
dc.titlePALLIATIVE CARE AND QUALITY OF LIFE IN PATIENTS WITH CANCER DURING THE TERMINAL PHASE. A FAMILY/PATIENT PERSPECTIVE
dc.title.alternativeCUIDADO HUMANIZADO EN PACIENTES CON CÁNCER AVANZADO. UNA PERSPECTIVA DESDE LA DIADA PACIENTE-FAMILIA
dc.typeARTÍCULO
dspace.entity.typePublication
ubb.EstadoPUBLICADA
ubb.Otra ReparticionDEPARTAMENTO DE ENFERMERIA
ubb.SedeCHILLÁN
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